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With Mabel

Ghost
withmabel.nz· irregular· Published 6 months ago

A New Zealand family's personal newsletter following their daughter Mabel's diagnosis with Wolfram Syndrome, covering her diabetes care, hearing and vision loss, and hospital experiences. It also includes plain-language explainers of the condition's symptoms and the family's reflections on parenting a child with a rare illness.

wolfram syndromedidmoad syndromediabetes insipidusoptic atrophytype 1 diabetes in childreninsulin pumpcontinuous glucose monitorpaediatric diabeteshearing lossrare disease familynew zealand
Platform
Ghost
Frequency
Irregular
Latest issue
Apr 29, 2026
Language
English
Written for
Families and carers of children with Wolfram Syndrome or diabetes
Tone
conversational
Tracked since
Oct 25, 2026

Website: https://withmabel.nz/