2 newsletters, ranked by editorial quality and how recently they published. Looking for something more specific? Search instead.
A personal blog by a parent of a child with a single ventricle heart, sharing candid stories, lessons learned and interviews with families and patients. It also covers European CHD advocacy and the emotional side of long hospital stays and life with congenital heart disease.
A patient-advocacy newsletter from the Channeling Hope Foundation covering research progress on NALCN channel-related disorders, including a newly cleared clinical trial for CLIFAHDD and interviews with its scientists. It suits families and caregivers following rare-disease research and how to get involved in trials.
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