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Channeling Hope Foundation

Ghost
channelinghope.org· irregular· Published 1 months ago

A patient-advocacy newsletter from the Channeling Hope Foundation covering research progress on NALCN channel-related disorders, including a newly cleared clinical trial for CLIFAHDD and interviews with its scientists. It suits families and caregivers following rare-disease research and how to get involved in trials.

nalcnclifahddchannelopathyaprepitantclinical trialrare disease researchion channelunc80patient registrydrug repurposing
Platform
Ghost
Frequency
Irregular
Latest issue
Sep 22, 2026
Language
English
Written for
Families and caregivers of people with NALCN-related disorders
Tone
news
Tracked since
Oct 21, 2026

Website: https://www.channelinghope.org/